One of the hardest parts of being on the autism spectrum is the high rate of unemployment and underemployment. Though the figures vary with each study, the estimate is usually given as 85%. Considering that the U.S. unemployment rate is currently around 3.7%, and the rate for those with a disability is around 7.2%, this is startling. There are many factors that contribute to this deficit, such as trouble in communication, failure to accommodate autistic workers, and biased hiring practices. All my life I’ve had trouble finding gainful employment, and while I know that the arts is a difficult career field, even for neurotypicals, it didn’t help in my efforts at securing a day job. Here are the jobs I’ve had throughout my life, not counting acting or writing jobs:
2003-2005: Periodicals Aide
This was the first regular job I had, working in my college library on work-study. It was a decent job, organizing newspapers and magazines, and I picked up a bit while reading them. However, I ended up leaving to devote more time to my senior thesis. At least I had some money saved up.
2006: Afterschool Tutor
I joined a program shortly after finishing college, however after orientation, I showed up to one session, and was no longer needed after that. This is pretty much a blip. After this I took a proofreading course and tried to find work as such, but was unsuccessful. Only one company said they would keep me on the list, and didn’t get back to me. To this date I’ve only gotten two proofreading jobs on theatre-related works, and the first did not end favorably for me, as I had agreed to do so in exchange for tuition in the author’s cold reading class, and after I admitted to her I was on the autism spectrum she gave me the cash instead, saying she couldn’t work with spectrumites. I used the money to take an improv course, still it doesn’t make such discrimination any more acceptable.
2008: Office Intern at Nonprofit
This was the same organization with which I fulfilled my community service requirements in high school, so I was familiar with the place. A lot of filing and sorting, and cramming papers into stuffed folders did leave a few paper cuts. I was paid by the hour, and would have done more hours had I not been involved with a musical that my grandmother described as “dreck” (and it pretty much was, but that’s for another post.) It was a decent temporary job, even if I did have one co-worker who kept saying “irrevelant” instead of “irrelevant,” which I found annoying.
2009-2010: United States Census Bureau
First I worked in 2009 as a canvassing agent, verifying addresses, then as an enumerator, interviewing people to help them complete their census forms. It was okay, even if going to the same building over and over was repetitive and not everyone cooperated, but still it was just a temporary job. I didn’t have a “survival job” after that because I was focused on getting acting work and qualifying for SAG-AFTRA, not to mention a failed attempt at grad school, so it would be years before my next major attempt at work, not counting day sessions at direct marketing (door to door sales) where the hours conflicted with my other interests.
2015: Fundraiser
You had to get up early to headquarters, where you weren’t allowed to sit down because you “stood by” your beliefs. After that the group was assigned to stand outside for hours soliciting donations for organizations like the Southern Poverty Law Center and Doctors Without Borders, and if you raised enough you got a commission, so . I tried it for a few days, but didn’t raise enough, so I didn’t make it. I made a second attempt and since these organizations have the same network, I again had to get up early and stand for a long time before going out, only to be sent home for not having the script down completely. Not my kind of acting gig.
2015: Energy Efficiency Consultant
I got this job through someone with whom I had acted in a rather lackluster play about Sierra Leone (another topic for a future post about my acting career). He said this was the greatest job in the world because you made thousands a month from just a few hours a day. The job was for an energy company where I would survey buildings to see which lights they used then draft a proposal as to how much money they would save by converting to LEDs, of which I would get a commission once the deal was closed and new lights were installed. Only we didn’t get to the last part. I worked there for over three months and not one deal on which I had worked got closed. Though it was the closest I had to a full-time permanent position, and I made a base salary ($12.50 an hour, which my uncle said wasn’t enough to rent a cardboard box in the alley), I decided there was no point doing a commission-based job if I wasn’t making commission, so I decided to quit and get a better job. Quitting was easy, getting a better job not so much.
2016-2017: Assistant Tempeh Maker
After almost a year of fruitless job hunting my brother got me this job through a friend’s dad who made tempeh. It paid even less ($11.00 per hour, minimum wage at the time) and required working once every two weeks (you couldn’t change shifts if something else came up), from 4:30 PM to 12:30 AM. I cooked and bagged beans, pured them into patty molds and cleaned up afterward. The best part was at dinner break, when we had some of our tempeh patties, still the late nights and coming home after 1:30 AM was a bother. My mother kept trying to boost my spirits by pointing out how unique a job it was. Yes, it was so unique it didn’t really have a title. Others said that making tempeh was right up my alley since I’m a vegan. I would remind them that a lot of people like burgers but they don’t want to work at McDonald’s. I stayed almost a year before going back to college to complete a BA in math.
2016-date: Poll Worker
At the job fairs people tell you this will earn you several hundred bucks in a few days. What they don’t mention is that the few days are over a period of several months and each workday requires you to arrive at the pollsite at 5:00 AM and stay until after all the ballots have been tabulated, usually after 10:00 PM, so you pull a seventeen-hour day. I’ve been doing this since 2016, and it’s okay for extra cash (especially since a lot of the job is just waiting around, so I bring a book to read) but not something I want to do full-time. My parents said I’m doing a great thing with this job. If only pretty ladies felt the same way.
2017-2021: Administrative Assistant
Someone in the subway who overheard me relate my employment issues to a friend. Despite the title it was more like a telemarketer, as I called colleges and seminaries and passed on information for the company, an online language program for college students. It was a bit shady but at least it gave me some income five years in a row.
2018-2020: AHRC
I actually liked this one. It was through one of my grandmother’s friends who attended an AHRC center in The Bronx. I was listed as a “creative specialist,” where I assisted with an arts program for developmentally disabled adults. I even made some art, and took up cartooning. Unfortunately it was only a few hours once a week, and being a nonprofit they couldn’t expand my hours. They said they had a theatre program, but I never got around to that as the center closed in the COVID shutdown and I was not rehired.
2019: Cirquador
I was with Cirque du Soleil when their show Luzia was presented at Citi Field. It sounds impressive to work for a circus, except I mainly worked the concession stand, making popcorn and serving snacks to the audience. It was fun, and I wouldn’t mind it again.
2020-2022: Online Tutoring
I had considered tutoring, and it worked for me, even though the pay wasn’t much. I even did some group classes in origami (it was hard keeping my computer camera in focus), as well as math and theatre, though suddenly the company let me go after schools were starting to reopen.
2021: Test & Trace Corps
As New York City began to reopen, I got a job as a contact tracer, meaning I just handed out masks to people throughout the five boroughs. It wasn’t that hard, just give them out and wait until closing time, or at least go home and come back in time to clock out (we had to use a phone app). At least until Hurricane Ida hit. Then we had to go to areas even further away from me, requiring a commute of two hours or so, and interview people in their homes to see if they needed assistance. Now we actually had to be outside all day, plus being in residential areas and not allowed to go past the front door, it wasn’t always easy finding a bathroom, unless you were comfortable going without fluids in a New York City summer (we were required to wear long pants, which didn’t help). One time I managed to go to the bathroom at a cheap motel in Brooklyn that smelled like cigarette smoke. Also, it was a bit strange that among my co-workers I was often the only white person there. The job only lasted a few months, and back to the hunt.
2021: Citi Field Kitchen
My folks think kitchen work would suit me since I do enjoy cooking, but working in a professional kitchen is a whole different story. Aside from being rushed (and constantly changing gloves), you had to go through a whole labyrinth of halls to get to the bathroom or the lunchroom or clock out. I lasted two days before a Mets game got rained out and postponed to the next day, meaning I’d have to be back at Citi Field in the morning, and since Flushing requires a lengthy commute from Washington Heights, that didn’t leave much time for sleep. Since I already had my contact tracer job lined up, it was no fuss quitting. At least I got a Mets cap out of it.
2022: Courier
I previously attempted a job delivering groceries on an e-bike, only it didn’t pan out because the phone app I had used wasn’t working. Turns out I had logged in wrong, but it took a few days to determine that, and I wasn’t kept for the job. This time I stayed on the job, and despite the misgivings of my parents I got the hang of maneuvering the bike. It seemed like something I could do…until we were all sent home from work early my fourth day on the job. Turns out the company had many Russian investors, and sanctions had been posed against Russia due to their invasion of Ukraine, so it went bankrupt. I related to my brother about how the crisis in Ukraine had cost me my job, and he replied, “Yeah, and students are getting killed.” Which, while true, is not what you say to someone who’s having no luck finding employment.
Currently I have two part-time jobs. One as a cruise agent, directing cruise passengers and scanning their documents. Decent, except when I have to work in The other is in retail, mainly in merch (and occasionally cleaning the bathroom). Neither job is full-time or pays too well, so my income stays small. My grandmother refers to such work as a “stopgap,” meaning a temporary solution until something better comes along. Temporary is taking longer than expected.
I’m still looking for a better job. I’ve been taking software courses and just obtained a Teaching Assistant certification, which will hopefully lead to better things. Still, adjusting for inflation, I haven’t made as much as $20,000 in any calendar year, and when I do my taxes this year I don’t expect that much, so I have yet to emancipate myself from my parents. I recognize that while I’m not doing well by NT standards, I’m faring better than most spectrumites due to partial employment. At least I have a roof over my head and some pocket money. Yet to keep getting on in years and not get closer to a career or a place of your own can be an emotional drain, especially as I fill out applications and going on interviews. As the saying goes, something’s got to give.